supporting hidradenitis suppurativa patients and medical research

links

HS Sites and Exchanges

Ruth's Hidradenitis links
hidradenitis-suppurativa.org
David's place on the web for HS sufferers. Features stories, images, links, and calls to activism.
hidralibrary
provides a collection of resources and a great photo section.
Hidradenitis - The Real Story - personal stories from HS sufferers.
The HS Angel Network
Created to provide personalized community support. Provides a monthly newsletter.
Wikipedia entry for Hidradenitis Suppurativa
For discussion and chat groups, see the Online Support section.

eMedicine - very comprehensive summary of HS medical information
The Doctor's Doctor Hidradenitis page - another very complete reference
Skinsite HS page
A Treatment Challenge (pdf) - American Family Physician
The Merck Manual of Diagnosis and Therapy
Dermatlas - Johns Hopkins University Dermatology Image Atlas. Search for Hidradenitis.
Staph may in some form or other be involved in the disease mechanism. If you are diagnosed as a carrier of the more serious form: MRSA (Methicillin Resistant Staphylococcus Aureus), read the CDC's MRSA Fact Sheet.
General description from the dermatology channel
British Association of Dermatologists (BAD) informative website.

NORD (National Organization for Rare Disorders, Inc.)
Please visit often to stay abreast with general "Rare Disease" issues. Excellent website!
ORD (Office of Rare Diseases)
Here you can find information on more than 7,000 rare diseases, including current research, publications from scientific and medical journals, completed research, ongoing studies, and patient support groups.
National Human Genome Research Institute
Information page on Hidradenitis Suppurativa
AARDA (American Autoimmune Related Diseases Association)
Organization dedicated to bringing focus to autoimmunity through research, education and patient services.
AAD (American Academy of Dermatology)
The American Academy of Dermatology is the largest, most influential and most representative of all dermatologic associations. With a membership of over 13,700, it represents virtually all practicing dermatologists in the United States.
NIAMS (National Institute of Arthritis and Musculoskeletal and Skin Diseases)
Support research into the causes, treatment, and prevention of arthritis and musculoskeletal and skin diseases.