hs-usa news archive 2002 / 2003

More success stories
++  12/13/2003  ++

A new section has been added to the Success Stories. Nutrition. Several people have been healed from HS with lifestyle changes that can be accomplished by anyone.
Read up, it may be worth a try!

 Rally Guest Speaker
++  12/12/2003  ++

We proudly announce that Dr. Samuel Thatcher will be a guest speaker at the 3rd Annual HS Rally in Nashville! For more information, please sign up with the Rally Yahoo group.

25,000 and counting!
++  11/12/2003 ++

The observant ones among you may have noticed that the counter at the bottom of this page has recently rolled over the 20,000 mark. While that is a great number it's only this page, and we have an even better one in store: Over the course of a little more than a year this site has reached over 25,000 people! If we could help only a tenth of those people with the information we provide, we have done our job.
Thank YOU for visiting!

Under My Skin
++  11/08/2003  ++

hs-usa proudly presents:
Under My Skin
A collection of poetry written by sufferers of Hidradenitis Suppurativa.
Requires Shockwave plug-in.

The hs-usa Abstract Database online
++  11/08/2003  ++

It's been quite a piece of work, and not perfectly complete yet, but the hs-usa Abstract Database is now available for your use. It aims to assemble and categorize published medical research articles relating to Hidradenitis Suppurativa.

Announcing the 3rd Annual HS RALLY!
++  11/01/2003  ++

June 3rd - 6th
 in Nashville, TN
Mark your calendars.
Start saving now.
Join the Rally 2004 Yahoo Group.
 Details will be announced as they become available.

Post your local meeting announcements
++  11/01/2003  ++

People are organizing in state and local groups, and more and more face-to-face meetings get arranged - a very emotional experience for people who have never met anyone else suffering from this silent disease. We have created a space to announce local meetings in our forum.
Please make copious use of it!

The Rad Woman Story!
++  09/17/2003  ++

Our own, very wonderful "Rad Woman" (name protected for privacy) has written her own account of her radiation treatments. Take a few ... hours..., a cup of tea or glass of wine, and enjoy her eloquent posts telling her tale.

THE STORE IS OPEN!
++  09/08/2003  ++

We decided to offer some cool hs-usa.org products for sale. Have a look at our new store. Anything you order will directly benefit HS-USA, plus raise awareness and encourage discussion about our disease.
Dare to wear it?

MAKING OUR REQUEST HEARD
++  07/13/2003  ++

Take some time to register your interest in our common request: To raise awareness and understanding for HS, to solicit research and ultimately find a cure!  Sign our online petition and read about the enormous impact this disease has on sufferer's lives.

New survey now available - Doctor Relations
++  06/29/2003  ++

Want to tell us about your experiences with medical personnel? Now is your chance to put it on record.
 Fill out our new survey and contribute to the collective voice.
The more respondents the louder the voice!
Our first survey, released in April, is close to clearing the 400 respondents hurdle- quite a representative number already.  Thanks bunches to everyone who participated!

Radiation Man Story now available at hs-usa
++  06/05/2003  ++

One of our support group's members underwent radiation 5 years ago.  His story - as told in postings to the discussion group - is now available here. "Radiation Man" has since inspired and supported several people to pursue the radiation path, all of them successfully.

First Annual Public Meeting
++  06/01/2003  ++ UPDATED!

HS-USA will be holding its first annual public meeting on
Wednesday June 18, 2003, at 2:00 p.m. EST in Brighton, Michigan USA

The meeting will be open for any and all who want to sit in and listen to. Yahoo Chat was chosen as a virtual platform to give the public a chance to participate. The room will be named: HS-USA and it is categorized under Health & Wellness - User Rooms.
HS-USA board members will be using voice and cameras.

Agenda:
operating expenses to date
reimbursement of start up funds
800 emergency phone number
fund raising programs

MINUTES:
Meeting Minutes have now been posted here.
 

We are now a 501(c)(3) organization!!
++  05/15/2003  ++

Effective immediately, we are a 501(c)(3) organization and all donations received are tax deductible.  Anyone making a donation will receive a letter of acknowledgement that serves as a receipt for tax reporting purposes.
Information on how to make donations to HS-USA can be found on the About Us page.

First Survey is now online!
++  03/30/2003  ++

hs-usa.org is proud to announce that we are now hosting online patient surveys, geared towards collecting and making available data about our disease.
The first of a series of HS-related surveys is now available. Please take about 10 minutes to answer some General Questions about you and HS.
All surveys are strictly confidential!

HS-USA Brochures now available!
++  03/30/2003  ++

 Fresh off the press!  The new HS-USA tri-fold brochures have been printed and can be ordered from the Publications page. You may also view them online/download them from there. Please be aware that 503c3 status has not been confirmed, so if you order today stickers to that effect will be mailed with the brochures. This information is not reflected in the downloaded brochures.
 

U.S. government targets autoimmune diseases!
++  02/02/2003  ++

 U.S. Health and Human Services Secretary Tommy G. Thompson has announced the release of a comprehensive research plan from HHS' National Institutes of Health (NIH) to fight autoimmune diseases
This may be exciting news for us!
See the HHS Press Release. which includes a link to the full report.

At the same time, Australian researchers are on their way to developing a VACCINE for autoimmune diseases.

Please visit the forum to participate in discussions on how we could profit from this research.

Expectations for 2003 from the founder of HS-USA, Inc.
 ++  January 2003  ++

We will soon receive our 501c3.

 We will print the first 5,000 copies of our tri-fold brochure and distribute it to physicians’ and other medical professionals’ offices and clinics, as well as to the general public by other means.

We will initiate a pro-active fund-raising program, although this will be a tough challenge in a weak economy with an uncertain future (other charities, including well-known ones, are not realizing their goals); our goal for 2003 is to raise $25,000, about one-fourth of which will go to reimbursement for start-up fees and related costs, with the remainder for education.

We will print another 10,000 copies of our brochures for continued education of medical professionals and the general public.

We will increase the presence of our message via radio interviews, articles in newsprint and magazines and hopefully some television exposure.

Happy New Year!
Vix Kennedy
 

HIDE Site restored
++   11/17/2002  ++

In an effort to preserve the work that was done and to continue providing the service and information to sufferers of this disease, we have restored the HIDE International site where possible and archived it here in its original, unaltered form.
Please note that some pages were not recoverable and therefore links and/or images may be broken.

UPDATE (8/3/03):  Until further notice we are removing the archive from our site.

We broke the 1,000 mark
++   11/12/2002  ++

Today the hit counter on our homepage (scroll down to view) has rolled over the 1,000 mark.  Hip hip hurrah!

HIDE Intl - gone back into HIDING 
++   10/25/2002  ++

As it turns out we have lost yet another effort, maybe one of the finest, most comprehensive and valuable efforts.
It was like the library burned down.
Here today - GONE tomorrow.
We are sorry to report that it seems that Hide Intl, Inc. has dissolved and gone back into complete hiding. The website that used to be at www.hideintl.org is gone, and with it years of diligent information gathering.  Sylvia Shawcross made the website happen and was instrumental in providing a collection of information that was invaluable to our community as well as the medical profession.
Without it we're nothing.
Without it we are starting over.
If you are responsible, or know ANYTHING about ANYONE involved in this organization, PLEASE contact us.