online support
Yahoo! Groups :
Hidradenitis
Most definitely the largest online hidradenitis support group with over 2000
members and a message archive dating back to 1998! A great starting place
for support, information, help and answers. Make sure you check out the
photos, files and databases for more information.
HS-USA.org Forum
Discussion board created and maintained by this site. We have tons of
information- FAQs, remedies, natural healing and nutrition ideas, radiation
talk, and much more...
Yahoo! Groups :
HS-Awareness
Support through activism! A group created to spread the word and raise
awareness about hidradenitis to the public, the media and the medical
community with the ultimate goal of finding a cure. This is the place to
speak out about your suffering and turn it into something positive.
Yahoo!
Groups : HidradenitisWorldwide
An international support- and medical information exchange group hosted by
Becky Hume. The core of this group has maintained one of the longest-running
hs-forums on the net!
Yahoo! Groups : Hidradenitis in Men
This group is dedicated to providing support and a discussion platform for
men with Hidradenitis Suppurativa.
Yahoo! Groups :
HS Girl Talk
This group is a place where women can talk about things that
might be uncomfortable to discuss around the men.
Yahoo!
Groups : HS Relationships
This is a group for people that have Hidradenitis Suppurativa and would like
to talk more about how HS affects their relationships and intimacy.
Yahoo! Groups: HCSC
Hidradenitis Community Support Group for personalized support and
conversation.
Yahoo!
Groups : HS Healing Hearts
A group for sufferers and their families who live in the USA and abroad.
Medical professionals are encouraged and welcome to participate in this
list. This list be conductive in a supportive atmosphere.
Yahoo!
Groups : HS Natural Healing
Focused on ways to heal HS (and related diseases) naturally. The group is
focused on trying different natural things and reporting back on their
experiences.
Yahoo!
Groups : Weight-Loss
Group of people with HS shedding the fat! While we know that being
overweight isn't the cause of this disease, it is accepted knowledge that
excess weight may aggravate it. Off with the pounds!
Yahoo! Groups : HS Hugs
There are many groups and message boards that offer great support for
hidradenitis sufferers, but they often lack support in terms of humor,
spirituality and good old-fashioned fun. HUGS stands for Hidradenitis
Understanding and Giving Support to HSer’s. This group is wide open in
concept allowing all forms of conversation, including venting, off subject
topics and jokes.
Yahoo! Groups :
HidraTeen
This group is for pre-teens, teens and young adults who suffer from HS.
Yahoo! Groups
: HS Spouses
This is a group where those married or in a relationship with people who
have Hidradenitis Suppurativa can come together to vent frustrations and
feelings of helplessness while our loved ones are in pain, or embarrassed by
their disease.
Yahoo! Groups
: HS Family and Friends
Let’s face it, hidradenitis effects our family and friends, too. They have
questions and issues and need support from others who are in the same
situation. This group was set up especially for the friends and family of HS
sufferers.
Yahoo!
Groups : HS Christian Prayer
A Christian prayer support group.
Yahoo! Groups :
HS Singles Hotspot
If you’re single and you have HS, you know how difficult it is to deal with
the subject of self-worth and relationships. This is your place to share and
discuss these issues and maybe even find your soul mate.
Yahoo! Groups :
Living with HS
Living with hidradenitis isn’t easy but each of us learns to cope and get
by. A group for sharing the trials and triumphs of our daily lives.
Yahoo! Groups :
bumpbuddies
An email message list for people with hidradenitis suppurativa and who wish
to find/give support to other people with HS through humor and friendship
Yahoo!
Hidradenitis Scientific And Medical Research
This group seeks out HS-specific research papers and explores alternative
patient-focused research and treatment paths. HiSci aims to increase public
and medical awareness about the need for basic research into HS and attempts
to synthesize and explain the sum total of what is known about HS.
MSN : Hidradenitis Support Club
A hidradenitis support group on MSN.
Usenet Newsgroup: alt.support.skin-diseases.hidradenitis
You can access this group either via your
news-reader, or
right in your web-browser through
Google groups.
SkinCell International Forum
This is a "skin-related disease" discussion forum. It may be a great place
to meet people with other skin disorders, or find people with HS who don't
know yet what they have.
Others:
- To find local support discussion groups in your home state, please
visit the State Contacts page.
- For local meeting announcements, please check the
Forum Announcements
Board.
- International support groups have been included in the
Links page, International
section.
|