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supporting hidradenitis suppurativa patients and medical research
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HS-USA Patient Surveys
HS-USA : HS-USA Patient Surveys
Thank you for checking in with HS-USA Surveys! If you are
afflicted with this disease we want to hear from you! Please read the
points below before choosing a survey from the list.
- Take the time to answer as many questions as you are able to answer.
However, all questions are optional, so you may skip a question if you don't
have an answer for it.
- Once you start a survey you'll have to finish it. The system will not
save a half-completed survey for you. If you leave, you'll have to start over
next time. Do not submit a half-completed survey,
since you will not be able to come back to it.
All surveys are categorized and
short enough to be completed in under 10 minutes.
- You will see the accumulated results (including yours) as soon as you
submit the survey. You can always come back to this page and click the
Results column in the list below to view each survey's results.
- HS-USA surveys are completely anonymous. We collect absolutely no
information that may identify you as an individual. We do collect your IP
(computer) address to ensure that surveys are not submitted multiple times.
- If you are sharing your computer with another sufferer of HS who would
like to submit a survey, please send an email to
webmaster@hs-usa.org - we can
"tweak" the software on a one-off basis to let you do that.
- Tell others! Pass on the web address for this page to anyone you
know who has this disease. We should be able to get at least 500
respondents to each survey! Please help us make that goal happen!
- If you have any questions, suggestions, problems, please don't hesitate to
tell us about them:
webmaster@hs-usa.org
Ready? Set! GO:
Name   |
Description |
Start Date |
Results |
Num Respondents |
| Related symptoms |
HS seems to come alongside many other conditions and diseases. This survey aims to find out what ELSE (besides HS) ails you. Please answer based on your entire history, and tell us about any diseases you've had even if you have since healed from them.
This survey is completely confidential and takes about 1/2 hour to complete. |
6/26/2004 |
Results |
1170 |
| Relationship with Doctors |
Tell us about time-to-diagnosis, which doctors are treating you and the quality of treatment received
(takes about 10 minutes to complete) |
6/29/2003 |
Results |
1239 |
